Page 27 - Inspire Magazine
P. 27

Working in


                                        partnership


                                        with


                                        patients





                                        Jackie Byers is an LCNS based at         It’s so much better if we can get in
                                        Glasgow’s Victoria Infirmary. She        there at the start of that journey and
                                        loves helping people face the            start to build trust – it’s not
                                        challenges of living with lung cancer.   something that happens overnight
                                                                                 - but hopefully we can build a solid
                                        “We try to provide emotional             relationship to benefit the patient.
                                        support for patients and their
                                        families. When a patient is diagnosed,   Part of our job is to empower
                                        it’s a very confusing time for them      patients, give them the confidence to
                                        and for their families - the world has   ask questions. Quite often we’ll
                                        just been turned totally                               urge them to write
                                        upside down, and we          “Patients and             everything down when
                                        try to untangle all of       families try to           they’re at home, nice
                                        that and try to help     protect each other,           and relaxed, so that
                                        the patient make         so they tend not to           when they come in for
                                        sense of it.                                           a consultation with the
                                                                  ask questions that           oncology team they

                                        A lot of patients and       they don’t want            can go through their
                                        families try to protect        to hear the             questions step-by-step.
                                        each other, so they            answer to...
                                        tend not to ask                                        We also encourage
                                        questions that they         that can really            them to bring
                                        don’t want to hear the   hinder the patient            somebody with them,
                                        answer to in case it       in their journey.”          because often when
                                        upsets their partner or                                you’re in that
                                        their children. It’s a sort of collusion,   environment, you tend to close up or
                                        if you like, and that can really hinder   to forget things – so having someone
                                        the patient in their journey.            with you can help – they can act as
                                                                                 a prompt, but they can also remind
                                        So, we try to take the patient away,     you of what’s been said.
                                        to talk to them on their own, but
                                        also support the family to let them      When we identify a patient who’s
                                        know that this is a normal part of       struggling in this way, we, as lung
                                        the journey. We’ll speak to them         cancer nurse specialists, will try to go
                                        separately too, because they often       into that consultation as well, so that
                                        have issues they don’t want to bring     we can discuss what’s been said and
                                        up. They also might have difficulties    make sure they’re clear about
                                        in speaking openly. It’s often a case of   everything. We try to encourage
                                        two people travelling along, but they    them to see the doctor or
                                        have very different journeys, with       oncologist as just a normal person     INSPIRE 2018
                                        different worries and questions.         who’s there to help them”.


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